The URL can be used to link to this page

Home My WebLink About022420 Rare Disease Day0ArmondoPavoneMayorProcCamationW’fiereas,therearenearly7,000diseasesandconditionsconsideredrare,eachaffectingfewerthan200,000AmericansintheUnitedStates,accordingtotheNationalInstitutesofHealth;and‘14/’Iiereas,whileeachofthesediseasesmayaffectsmallnumbersofpeople,rarediseasesasagroupaffectalmost30millionAmericans;andWñereas,whilemorethan450drugsandbiologicshavebeenapprovedforthetreatmentofrarediseasesaccordingtotheFoodandDrugAdministration,millionsofAmericansstillhaverarediseasesforwhichthereisnoapprovedtreatment;andWfiereas,individualsandfamiliesaffectedbyrarediseasesoftenexperiencesignificanthardshipsandimpactssuchasdiagnosisdelay,difficultyfindingamedicalexpert,andlackofaccesstotreatments;andJ4)fiereas,whilethepublicisfamiliarwithsomerarediseases,manypatientsandfamiliesaffectedbylesswidelyknownrarediseasesbearalargeshareoftheburdenoffundingresearchandraisingpublicawarenesstosupportthesearchfortreatments;andWIiereas,theNationalOrganizationforRareDisordersisorganizinganationwideobservanceofRareDiseaseDayonFebruary29,2020,toraiseawarenessamongstthegeneralpublicanddecision-makersaboutrarediseasesandtheirimpactonpatients’lives;Wow,tfierefore,I,ArmondoPavone,MayoroftheCityofRenton,doherebyproclaimFebruary29,2020,tobeRgreDiseaseDayintheCityofRenton,andIencourageallmembersofthecommunitytojoinmeinthisspecialobservation.InwitnesswfiereofIhavehereuntosetmyhandandcausedthesealoftheCityofRentontobeaffixedthis24thdayofFebruary,2020.‘MayorCityofRenton,WashingtonRentonCityHall,7thFloor1055SouthGradyWay,Renton,WA98057.rentonwa.gov